But You Don’t Look Sick! Living with Celiac Disease

Written by amyr

October 3, 2013

 

Have you heard the one about the child with a tummy ache? “He wasn’t really sick, he was just nervous.” Or the one about the freshly-baked cookie: “one won’t hurt you!” Having celiac disease or other gastrointestinal disorders often means looking fine while feeling sick. Unlike when you have the flu or hives, where you “look as bad as you feel,” when you have celiac disease and have been “glutened,” you may look outwardly fine while feeling terrible inside. For my family members with celiac disease, the only outward sign of glutening is the need to sleep – for many hours at a time. Their symptoms may not be your symptoms or your neighbor’s symptoms. One of the reasons celiac disease often goes undiagnosed is the inconsistent presentation of the disease.

These cookies won’t make you sick!

Learning to live with celiac disease means learning to recognize when your body says things aren’t well. You know when things aren’t right, and you know (or will learn) which things make you feel okay. Learning to live with a family member’s celiac disease is about learning to respect how they say they feel. When my son says he is too sick to stay at school, I have to respect his words. He needs to know that I understand that the inside and the outside don’t always look the same.

Having celiac disease also means learning to stand up for yourself, no matter how awkward it may make you or your host feel. Better to pass on the pie than risk days of sickness. People without celiac disease or gluten-sensitivity in their life don’t understand why just one cracker matters. When they offer to share food with you, they aren’t trying to make you sick; they are trying to include you. So saying “I’m sorry I can’t have a piece of cake, but thank you for inviting me” sounds better than “Are you trying to make me sick with that cake?”

This week’s recipes are all about finding comfort in food – after you have been diagnosed with celiac disease or gluten-sensitivity, this can sometimes be hard.

Eggy Rice is my family’s go-to comfort food. It is a good source of clean protein, it works alone and with other foods, and it is quick to make. We often serve it as the base for stir-fry dishes, as here with Gingery Carrots and Kale with Shiitaki Mushrooms. If rice doesn’t bring you comfort, substitute millet or quinoa instead.

Enjoy!

— Amy

Eggy Rice
Serves 2 as a main dish or 4 as a side dish. Easily doubles!

Ingredients

  • 2 tsp grapeseed (or other neutral) oil
  • 3 cups cooked brown (or white) rice
  • 4 eggs, scrambled
  • Pinch or two of kosher salt

Directions

Pour the eggs into the rice well

Heat oil in non-stick frying pan or wok over medium-high heat. Add rice and stir to break up grains. Make a well in the center of the rice and add eggs. Sprinkle with salt. Stir eggs to bring cooked part to top. When eggs are mostly cooked, mix rice in with eggs. Remove from heat.

 

Gingery Carrots
Serves 2 as a main dish or 4 as a side dish. Easily doubles!

Ingredients

  • 2 tsp of grapeseed oil
  • 1 large or 2 medium shallots, peeled and minced
  • 8-10 medium carrots, peeled and sliced into 1/4 inch discs
  • 1/2 tsp kosher salt
  • 1/2 tsp ground ginger

Directions
Heat oil in medium frying pan or wok over medium-high heat. Add shallots and cook for 2-3 minutes, until beginning to soften. Add carrots and cook for 4-5 minutes. Sprinkle salt and ginger to taste. Cook until carrots are just beginning to get tender but are not soft. Remove from heat.

 

Kale with Shiitake Mushrooms
Serves 4

Ingredients

  • 2 tsp of grapeseed oil
  • 2 cloves of garlic, minced
  • 1 bunch lacinto kale, sliced crosswise into thin ribbons
  • 1/2 pound shiitake mushrooms, stems removed and sliced into thin strips
  • 1 Tbs Tamari soy sauce (gluten-free)
  • 1 tsp Ume plum vinegar or red wine vinegar

Directions

Heat oil in medium frying pan or wok over medium-high heat. Add garlic and stir for 1 minute. Add mushrooms and stir for 1 minutes. Add kale and stir constantly, cooking until kale is coated with oil and beginning to wilt. Add soy sauce and 1-2 tablespoons of water. Cook until kale is cooked through (add more water if kale or garlic are sticking to pan). Remove from heat and sprinkle with vinegar before serving.

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